Cancer Information Management
Cancer registrars are data management experts who report cancer statistics for various healthcare agencies. Registrars work closely with physicians, administrators, researchers, and health care planners to provide support for cancer program development, ensure compliance of reporting standards, and serve as a valuable resource for cancer information with the ultimate goal of preventing and controlling cancer. The cancer registrar is involved in managing and analyzing clinical cancer information for the purpose of education, research, and outcome measurement.
The primary responsibility of the cancer registrar is to ensure that timely, accurate, and complete data is incorporated and maintained on all types of cancer diagnosed and/or treated within an institution or other defined population. Information is entered into the database manually and through database linkage and computer interfaces.
Cancer registrars bridge the information gap by capturing a complete summary of the patient's disease from diagnosis through their lifetime. The information is not limited to the episodic information contained in the health care facility record. The summary or abstract is an ongoing account of the cancer patient's history, diagnosis, treatment, and current status.
In addition to managing and reporting cancer data, registrars serve in multiple other professional activities. Cancer registrars participate in cancer program, institution, and community benefit activities as part of the active leadership structure. Registrars provide benchmarking services, monitor quality of care and clinical practice guidelines, assess patterns of care and referrals, and monitor adverse outcomes including mortality and co-morbidity. Cancer registrars can provide consultative services on many issues including registry management and program standards.
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